It would be hard to write anything at this time of year without focusing on life’s blessings. Just over the last few months, we have been thankful again and again.
Through the summer & fall, Ava has been able to do the things every child should. We haven’t missed a therapy treatment, but still manage to squeeze in:
Running a touchdown at Cowboy Stadium
A trip to the beach
Turning 5!
And being a pirate for Halloween.
Ava’s most recent CF appointment, in September, could not have gone better. Her oxygen saturation hit 100% and her BMI is still well above the 50th percentile, hanging in around the 60th.
She is continuing to improve at taking the pulmonary function test. Soon this will give us an even better idea of her lung health. The doctor said her lungs sounded clear and we don’t need to follow up for another 3 months!
The Cystic Fibrosis Foundation continues to take steps to make CF stand for “Cure Found.” Just yesterday an article was published about their collaboration with a pharmaceutical company to develop drugs for patients with the Delta F508 mutation, Ava’s mutation. You can read more here: Genzyme-and-CFFT-to-Collaborate
Lastly, Ava told me she is thankful that she didn’t have to stay in the hospital this year. For this, we are whole heartedly thankful to the advances made by the CF Foundation & the efforts of all of Ava’s Angels - those who continually pray, educate, walk, donate, fund raise, and do whatever they can to make a difference in the lives of those with Cystic Fibrosis.
Thank you.
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